НИВО ПЕРЦИПИРАНЕ СОЦИЈАЛНЕ ПОДРШКЕ ОСОБА СА ДЕМЕНЦИЈОМ У РЕЗИДЕНЦИЈАЛНОМ СМЕШТАЈУ У СРБИЈИ: ПИЛОТ ИСТРАЖИВАЊЕ
DOI:
https://doi.org/10.22190/TEME200530047DKljučne reči:
перципирана социјална подршка, деменција, резиденцијални смештај, СрбијаApstrakt
Циљ овог истраживања је да се испита ниво добијене социјалне подршке на основу самопроцене код особа са деменцијом у установама резиденцијалног типа. Поред тога, циљ ове студије је и да се утвде нивои перципиране социјалне подршке из различитих извора у социјалном окружењу особа са деменцијом. Узорак се састојао од 29 испитаника са дијагнозом благог до умереног облика деменције. Као инструмент за процену социјалне подршке коришћена је Мултидимензионална скала перципиране социјалне подршке (МСПСС). Резултати су прелиминарно показали да особе са благом и умереном деменцијом у резиденцијалном смештају оцењују добијен ниво социјалне подршке прилично високо, а сама подршка није у вези са полом или нивоом образовања испитаника. Поред тога, испитаници добијају значајно више подршке од стране породице у поређењу са пријатељима и другим значајним особама, што је потенцијално условљено социо‑економским и демографским факторима, као променама у друштвеном миљеу које се дешавају старењем. Ови налази су важан почетак истраживања који се бави квалитетом живота особа са деменцијом, а све у циљу побољшања постојећих механизама социјалне подршке у Србији.
Reference
Arlt, S., Hornung, J., Eichenlaub, M., Jahn, H., Bullinger, M., & Petersen, C. (2008). The patient with dementia, the caregiver and the doctor: cognition, depression and quality of life from three perspectives. International Journal of Geriatric Psychiatry: A journal of the psychiatry of late life and allied sciences, 23(6), 604-610. DOI: 10.1002/gps.1946
American Psychiatric Association. (2000). Diagnostic and statistic manual of mental disorders (4th ed.). Washington DC: American Psychiatric Publishing.
American Psychiatric Association (2013). Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition. Arlington, VA: American Psychiatric Association.
Banerjee, S., Samsi, K., Petrie, C. D., Alvir, J., Treglia, M., Schwam, E. M., & del Valle, M. (2009). What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. International Journal of Geriatric Psychiatry: A journal of the psychiatry of late life and allied sciences, 24(1), 15-24. DOI: 10.1002/gps.2090
Cahill, S., Begley, E., Topo, P., Saarikalle, K., Macijauskiene, J., Budraitiene, A., ... & Jones, K. (2004). ‘I Know Where this is Going and I Know it won’t Go Back’ Hearing the Individual’s Voice in Dementia Quality of Life Assessments. Dementia, 3(3), 313-330. DOI: 10.1177/1471301204045163
Cantley, C., & Smith, M. (2007). Getting on with living: A guide to developing early dementia support services. London: Mental Health Foundation.
Fratiglioni, L., Launer, L. J., Andersen, K., Breteler, M. M., Copeland, J. R., Dartigues, J. F., ... & Hofman, A. (2000). Incidence of dementia and major subtypes in Europe: A collaborative study of population-based cohorts. Neurologic Diseases in the Elderly Research Group. Neurology, 54(11 Suppl 5), S10-5. https://www.researchgate.net/profile/Antonio_Lobo6/publication/12464923_Prevalence_of_dementia_and_major_subtypes_in_Europe_A_collaborative_study_of_population-based_cohorts/links/561cae2d08aea8036724b53a.pdf
Folstein, M. F., Folstein, S. E., & McHugh, P. R. (1975). “Mini-mental state”: a practical method for grading the cognitive state of patients for the clinician. Journal of psychiatric research, 12(3), 189-198. DOI: 10.1016/0022-3956(75)90026-6
Fusilier, M. R., Ganster, D. C., & Mayes, B. T. (1986). The social support and health relationship: Is there a gender difference?. Journal of Occupational Psychology, 59(2), 145-153. DOI: 10.1111/j.2044-8325.1986.tb00220.x
Gleeson, H., Hafford-Letchfield, T., Quaife, M., Collins, D. A., & Flynn, A. (2019). Preventing and responding to depression, self-harm, and suicide in older people living in long term care settings: a systematic review. Aging & mental health, 23(11), 1467-1477. DOI: 10.1080/13607863.2018.1501666
Goodglass, H., Kaplan, E., & Weintraub, S. (2001). BDAE: The Boston Diagnostic Aphasia Examination. Philadelphia, PA: Lippincott Williams & Wilkins.
Hamilton, H. E. (2008). Language and dementia: Sociolinguistic aspects. Annual Review of Applied Linguistics, 28, 91. DOI: 10.1017/S0267190508080069
Harris, P. B. (Ed.). (2002). The person with Alzheimer's disease: Pathways to understanding the experience. Baltimore: JHU Press.
Helgeson, V. S. (2003). Social support and quality of life. Quality of life research, 12(1), 25-31. DOI: 10.1023/A:1023509117524
Holwerda, T. J., Deeg, D. J., Beekman, A. T., van Tilburg, T. G., Stek, M. L., Jonker, C., & Schoevers, R. A. (2014). Feelings of loneliness, but not social isolation, predict dementia onset: results from the Amsterdam Study of the Elderly (AMSTEL). Journal of Neurology, Neurosurgery & Psychiatry, 85(2), 135-142. DOI: 10.1136/ jnnp-2012-304479
Hurt, C., Bhattacharyya, S., Burns, A., Camus, V., Liperoti, R., Marriott, A., ... & Verhey, F. (2008). Patient and caregiver perspectives of quality of life in dementia. Dementia and geriatric cognitive disorders, 26(2), 138-146. DOI: 10.1159/000149584
Kane, R. A., Kling, K. C., Bershadsky, B., Kane, R. L., Giles, K., Degenholtz, H. B., ... & Cutler, L. J. (2003). Quality of life measures for nursing home residents. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 58(3), 240-248. DOI: 10.1093/gerona/58.3.M240
Launer, L. J., & Hofman, A. (2000). Frequency and impact of neurologic diseases in the elderly of Europe. Neurology, 54(11), 1-8.
Levitt, M. J., Weber, R. A., & Guacci, N. (1993). Convoys of social support: An intergenerational analysis. Psychology and aging, 8(3), 323-326. DOI: 10.1037/0882-7974.8.3.323
Logsdon, R. G., McCurry, S. M., & Teri, L. (2006). Time-limited support groups for individuals with early stage dementia and their care partners: Preliminary outcomes from a controlled clinical trial. Clinical Gerontologist, 30(2), 5-19. DOI: 10.1300/J018v30n02_02
Lyyra, T. M., & Heikkinen, R. L. (2006). Perceived social support and mortality in older people. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 61(3), S147-S152. DOI: 10.1093/geronb/61.3.S147
Mason, E., Clare, L., & Pistrang, N. (2005). Processes and experiences of mutual support in professionally-led support groups for people with early-stage dementia. Dementia, 4(1), 87-112. DOI: 10.1177/1471301205049192
Matud, M. P., Ibañez, I., Bethencourt, J. M., Marrero, R., & Carballeira, M. (2003). Structural gender differences in perceived social support. Personality and Individual Differences, 35(8), 1919-1929. DOI: 10.1016/S0191-8869(03)00041-2
Milanović Dobrota, B. (2017). Poznavanje bioloških, psiholoških i socioloških aspekata starosti u populaciji odraslih osoba (Familiarity With Biological, Psychological and Sociological Aspects of Ageing Among Adult Population). Andragoške studije, (1), 125-144. DOI: 10.5937/andstud1701125M
Moyle, W., Mcallister, M., Venturato, L., & Adams, T. (2007). Quality of life and dementia: the voice of the person with dementia. Dementia, 6(2), 175-191. DOI: 10.1177/1471301207080362
Moyle, W., Murfield, J. E., Griffiths, S. G., & Venturato, L. (2011). Assessing quality of life of older people with dementia: A comparison of quantitative self‐report and proxy accounts. Journal of advanced nursing, 68(10), 2237-2246. DOI: 10.1111/j.1365-2648.2011.05912.x
Nygård, L. (2006). How can we get access to the experiences of people with dementia? Suggestions and reflections. Scandinavian Journal of Occupational Therapy, 13(2), 101-112. DOI: 10.1080/11038120600723190
Raca, M. (2019, 4. novembar). Negovatelji dementnih ukućana u Srbiji: Nevidljivi za sistem, neophodni za život. BBC na srpskom.
https://www.bbc.com/serbian/lat/srbija-50283491
Rowe, J. L., Conwell, Y., Schulberg, H. C., & Bruce, M. L. (2006). Social support and suicidal ideation in older adults using home healthcare services. The American journal of geriatric psychiatry, 14(9), 758-766. DOI: 10.1097/01.JGP.0000218324.78202.25
Sabat, S. R., Napolitano, L., & Fath, H. (2004). Barriers to the construction of a valued social identity: A case study of Alzheimer's disease. American Journal of Alzheimer's Disease & Other Dementias, 19(3), 177-185. DOI: 10.1177/153331750401900311
Saunders, P. A., de Medeiros, K., Doyle, P., & Mosby, A. (2012). The discourse of friendship: Mediators of communication among dementia residents in long-term care. Dementia, 11(3), 347-361. DOI: 10.1177/1471301211421187
Simon, M. A., Chen, R., & Dong, X. (2014). Gender differences in perceived social support in US Chinese older adults. J Gerontol Geriatr Res, 3(4), 163-172. DOI: 10.4172/2167-7182.1000163
Sloane, P. D., Zimmerman, S., Williams, C. S., Reed, P. S., Gill, K. S., & Preisser, J. S. (2005). Evaluating the quality of life of long-term care residents with dementia. The Gerontologist, 45(suppl 1), 37-49. DOI: 10.1093/geront/45.suppl_1.37
Stokes, J. P., & Wilson, D. G. (1984). The inventory of socially supportive behaviors: Dimensionality, prediction, and gender differences. American journal of community psychology, 12(1), 53-69. DOI: 10.1007/BF00896928
Thorgrimsen, L., Selwood, A., Spector, A., Royan, L., de Madariaga Lopez, M., Woods, R. T., & Orrell, M. (2003). Whose quality of life is it anyway?: The validity and reliability of the Quality of Life-Alzheimer's Disease (QoL-AD) scale. Alzheimer Disease & Associated Disorders, 17(4), 201-208. DOI: 10.1097/00002093-200310000-00002
Trigg, R., Jones, R. W., & Skevington, S. M. (2007). Can people with mild to moderate dementia provide reliable answers about their quality of life?. Age and Ageing, 36(6), 663-669. DOI: 10.1093/ageing/afm077
Turner, R. J., & Marino, F. (1994). Social support and social structure: A descriptive epidemiology. Journal of health and social behavior, 193-212. DOI: 10.2307/2137276
Vanderhorst, R. K., & McLaren, S. (2005). Social relationships as predictors of depression and suicidal ideation in older adults. Aging & mental health, 9(6), 517-525. DOI: 10.1080/13607860500193062
Van Der Roest, H. G., Meiland, F. J., Maroccini, R., Comijs, H. C., Jonker, C., & Dröes, R. M. (2007). Subjective needs of people with dementia: a review of the literature. International Psychogeriatrics, 19(3), 559-592. DOI: 10.1017/S1041610206004716
Von dem Knesebeck, O., & Geyer, S. (2007). Emotional support, education and self-rated health in 22 European countries. BMC Public Health, 7(1), 272. DOI: 10.1186/1471-2458-7-272
Vuković, M. (2019). Neurodegenerativni poremećaji govora i jezika (Neurodegenerative Speech and Language disorders). Beograd: Fakultet za specijalnu edukaciju i rehabilitaciju, Izdavački centar.
Walen, H. R., & Lachman, M. E. (2000). Social support and strain from partner, family, and friends: Costs and benefits for men and women in adulthood. Journal of social and personal relationships, 17(1), 5-30. DOI: 10.1177/0265407500171001
Zimet, G. D., Dahlem, N. W., Zimet, S. G., & Farley, G. K. (1988). The multidimensional scale of perceived social support. Journal of personality assessment, 52(1), 30-41. DOI: 10.1207/s15327752jpa5201_2
Zunzunegui, M. V., Alvarado, B. E., Del Ser, T., & Otero, A. (2003). Social networks, social integration, and social engagement determine cognitive decline in community-dwelling Spanish older adults. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 58(2), S93-S100. DOI: 10.1093/geronb/58.2.S93
